How do you parent without a future, knowing that you will coping with loss essay your child, bit by bit? Emily Rapp and her son, Ronan, who has Tay-Sachs disease. Internet Explorer 9 or earlier.
Go to the home page to see the latest top stories. Santa Fe University of Art and Design. MY son, Ronan, looks at me and raises one eyebrow. His eyes are bright and focused. Irish and it suits him.
I want to stop here, before the dreadful hitch: my son is 18 months old and will likely die before his third birthday. Ronan was born with Tay-Sachs, a rare genetic disorder. He is slowly regressing into a vegetative state. In-depth reference and news articles about Seizures. There is no treatment and no cure. How do you parent without a net, without a future, knowing that you will lose your child, bit by torturous bit?